I was finally moved to intermediate care where my memories start coming back although they are "broken" memories. I have glimpses of reality and many more dreams from another world. However, I did start responding to requests to wiggle my toes, blink my eyes or stick out my tongue. The neurolgists were greatly concerned at this point because the ADEM was so severe. They wondered if I would ever sit up and talk again - let alone walk. At first, the doctors wondered if I would be any better off than Christopher Reeves was.
To test my response time and muscle control, they asked me to stick out my tongue which I complied with. The next thing they request was for me to wiggle my big toe on one foot. I was only able to move it the slightest bit. And then, I was asked to move the big toe on my other foot. Well, low and behold...I stuck out my tongue. The doctor's said that it was a disconnect in my brain due to the ADEM. But I'd like to think of it as my way of saying this is RIDICULOUS and a way of showing my sense of humor. Of course in the days to follow, my responses proved that the doctors' theory was correct and I really did have some disconnect in my brain function.
Sun, 1 Nov 2009 16:58:36 -0600
Heather’s condition has improved so they moved her to Intermediate Care on the 4th floor and out of ICU. She still has mobility problems and can barely move her fingers and toes but is doing much better on her oxygen. For those of you who’ve asked how you can help, right now, besides the prayers, we could use two things:
Because I’ll be going back to work full time, it would be nice to have people spend some time sitting with her. She can’t talk yet but is very much awake and aware and will have you grinning at her “signals” of blinking eyes, sticking out her tongue and winking! (Please email me when you can visit)
In lieu of sending flowers, if you were planning on such a purchase, a gift card to Kohls or Target would probably be better for her as she’s lost quite a bit of weight from this ordeal and after physical therapy, will need to buy some clothes she can wear. The reason I suggest Kohls or Target is that both stores are less than a mile from the house and it will be easier when she gets home to get her there and back.
Thursday, June 17, 2010
In Between Worlds
Being on a paralytic as well as all of the medications, I was truly unaware of everything going on around me. I'm told that it is a very good thing that I don't remember. Towards the end of week 4, I began to move back into the conscious world though I was still in a drug induced world as well. The memories I have of this time are extreme and disturbing but we will get to that later.
At the very end of the week, we were hit with another curveball. I developed ADEM which is Acute Disseminated Enchephamylitis. Basically being the over achiever that I am, my body (by mistake) attacked the white matter of my brain while fighting the ARDS. I guess there are times when eing a perfectionist can get you into trouble!
Sun, 25 Oct 2009 19:32:57 -0500
They’re weaning Heather’s O2 pressure (PEEP) down along with the sedative. When I walked in this morning, her PEEP was at 8 and her blood oxygen level was at 99% which is absolutely amazing. Her fever is gone and they plan on trying to see if she can breathe by herself tomorrow if they can get the PEEP to 5. (it was at 6 when I left tonight) If she can breathe ok, they’ll remove the vent. If not, they’ll do a tracheotomy and add a trach tube, which will be much more comfortable for her. She’s still weak muscularly due to the steroids and the paralytic but she’s able to recognize us when we’re there.
Mike
Mon, 26 Oct 2009 17:56:46 -0500
Due to the paralytic drugs combined with the steroids the doctors had to give Heather to save her life, she’s still unable to move as much as the doctors would like. Her O2 levels are near normal breathing (40% O2 and a PEEP of 5) but they feel it’d be better to give her a tracheotomy rather than just pulling the breathing tube out at this point. This is pretty normal for patients who’ve been on a vent for this long. They’ll do the procedure tomorrow at 11:00am. She’ll have to have it in for at least a week…so we expect her to be in ICU for at least another week. She can have visitors, so any of you who’d like to visit and sit with her, please send me an email and we can arrange a time.
Thanks,
Mike
Tue, 27 Oct 2009 21:51:53 -0500
Heather’s Tracheostomy went well today. I left around 3:00pm but she looked much more comfortable as compared to when she had the tube down her throat. She was still coming off the anesthesia so she’s wasn’t as lucid as I would have hoped. I’ll be there in the morning to see how she’s doing but from what I can tell, it’ll make a world of difference to getting her off the vent. The doctor mentioned he expects her to be off the vent in a week.
Fri, 30 Oct 2009 06:01:40 -0500
Sorry it’s been a couple of days since I sent updates. Between work, spending time at the hospital and trying to sleep…I’ve been pretty busy.
Yesterday was an awesome day. Heather seemed to suddenly “wake up”! When I walked in, I thought I’d hear a doctor to tell me she’d had some sort of brain injury as a result of saving her life and that she’d not ever be the same. When I walked in, there wasn’t a nurse right at her bedside so I just walked in. She was looking straight at me. I asked her to blink her eyes a few times if she understood me. I told her I loved her and blew her a kiss. She blew one back! The nurse came by and said that they’d been working on range of motion and that she’d gotten Heather to stick out her tongue if she were in pain and that she’d been able to weakly squeeze both hands. Brandy came by and spent the afternoon with her. She and the nurse took care of her skin and put her hair in pigtails. The Neurologists came by a little later and ordered an MRI which they did last night. (No results yet) Hopefully all will be well but yesterday was a major improvement. You can’t imagine how it feels to kiss your wife after 3 weeks of missing her!
Mike
Sat, 31 Oct 2009 06:26:36 -0500
Heather is more and more alert but still has trouble moving her fingers and toes. The doctors did an MRI yesterday and explained that she has Acute Disseminated Encephalomyelitis, which I’ll not try to explain in detail here. Please visit this page for more information: http://www.ninds.nih.gov/disorders/acute_encephalomyelitis/acute_encephalomyelitis.htm
They’ll start intravenous immunoglobulin therapy today for four days in hopes it will arrest the disease. She’s in great spirits and could use visitors. I also could use help during the week for anyone who can sit with her while I work. This can be a couple of hours, but it’s been almost 4 weeks now and I have to get back to work in order to make sure we keep a house over our head. If you’d like to visit or help out, please email me and we’ll arrange times.
Thanks,
Mike
At the very end of the week, we were hit with another curveball. I developed ADEM which is Acute Disseminated Enchephamylitis. Basically being the over achiever that I am, my body (by mistake) attacked the white matter of my brain while fighting the ARDS. I guess there are times when eing a perfectionist can get you into trouble!
Sun, 25 Oct 2009 19:32:57 -0500
They’re weaning Heather’s O2 pressure (PEEP) down along with the sedative. When I walked in this morning, her PEEP was at 8 and her blood oxygen level was at 99% which is absolutely amazing. Her fever is gone and they plan on trying to see if she can breathe by herself tomorrow if they can get the PEEP to 5. (it was at 6 when I left tonight) If she can breathe ok, they’ll remove the vent. If not, they’ll do a tracheotomy and add a trach tube, which will be much more comfortable for her. She’s still weak muscularly due to the steroids and the paralytic but she’s able to recognize us when we’re there.
Mike
Mon, 26 Oct 2009 17:56:46 -0500
Due to the paralytic drugs combined with the steroids the doctors had to give Heather to save her life, she’s still unable to move as much as the doctors would like. Her O2 levels are near normal breathing (40% O2 and a PEEP of 5) but they feel it’d be better to give her a tracheotomy rather than just pulling the breathing tube out at this point. This is pretty normal for patients who’ve been on a vent for this long. They’ll do the procedure tomorrow at 11:00am. She’ll have to have it in for at least a week…so we expect her to be in ICU for at least another week. She can have visitors, so any of you who’d like to visit and sit with her, please send me an email and we can arrange a time.
Thanks,
Mike
Tue, 27 Oct 2009 21:51:53 -0500
Heather’s Tracheostomy went well today. I left around 3:00pm but she looked much more comfortable as compared to when she had the tube down her throat. She was still coming off the anesthesia so she’s wasn’t as lucid as I would have hoped. I’ll be there in the morning to see how she’s doing but from what I can tell, it’ll make a world of difference to getting her off the vent. The doctor mentioned he expects her to be off the vent in a week.
Fri, 30 Oct 2009 06:01:40 -0500
Sorry it’s been a couple of days since I sent updates. Between work, spending time at the hospital and trying to sleep…I’ve been pretty busy.
Yesterday was an awesome day. Heather seemed to suddenly “wake up”! When I walked in, I thought I’d hear a doctor to tell me she’d had some sort of brain injury as a result of saving her life and that she’d not ever be the same. When I walked in, there wasn’t a nurse right at her bedside so I just walked in. She was looking straight at me. I asked her to blink her eyes a few times if she understood me. I told her I loved her and blew her a kiss. She blew one back! The nurse came by and said that they’d been working on range of motion and that she’d gotten Heather to stick out her tongue if she were in pain and that she’d been able to weakly squeeze both hands. Brandy came by and spent the afternoon with her. She and the nurse took care of her skin and put her hair in pigtails. The Neurologists came by a little later and ordered an MRI which they did last night. (No results yet) Hopefully all will be well but yesterday was a major improvement. You can’t imagine how it feels to kiss your wife after 3 weeks of missing her!
Mike
Sat, 31 Oct 2009 06:26:36 -0500
Heather is more and more alert but still has trouble moving her fingers and toes. The doctors did an MRI yesterday and explained that she has Acute Disseminated Encephalomyelitis, which I’ll not try to explain in detail here. Please visit this page for more information: http://www.ninds.nih.gov/disorders/acute_encephalomyelitis/acute_encephalomyelitis.htm
They’ll start intravenous immunoglobulin therapy today for four days in hopes it will arrest the disease. She’s in great spirits and could use visitors. I also could use help during the week for anyone who can sit with her while I work. This can be a couple of hours, but it’s been almost 4 weeks now and I have to get back to work in order to make sure we keep a house over our head. If you’d like to visit or help out, please email me and we’ll arrange times.
Thanks,
Mike
A Turn for the Better
Week 3 came along and I was making progress which gave everyone hope and encouragement that I would pull through the whole ordeal. The routine was more of the same. The emails below recount the week better than I can.
Sun, 18 Oct 2009 20:03:10 -0500
I spoke with Dr. Winegardner this morning and she seems to have turned a corner. They have her temperature under control. (it was a reaction to specific meds) Her kidney functions are improving. She was able to withstand 5 hours on her back with O2 at 50%. He said that he’s hopeful that she could be out of this bed and into a regular hospital bed in the next couple of days. I can’t tell you the relief we felt today when he said that. Anyone who doesn’t believe in the power of prayer or at the very least, positive energy, needs to take a look at what it’s done for our family! I’ll continue to send out updates until she’s home. I know many people will want to see her and talk to her when she’s out of the hospital, but realize that she’ll still need lots of care before she’s recovered fully. I don’t want to her to become overwhelmed. You know Heather…she’ll want to take on too much too soon!
Mike
Mon, 19 Oct 2009 18:54:37 -0500
Heather was able to withstand 10 hours on her back last night. The doctors are hopeful that she’ll be out of this bed and into a regular hospital bed in the ICU in the next couple of days. Her O2 is at 40% and PEEP of 8. Major change as compared to Sunday the 11th. Here is a guide on ARDS for those of you who will want to see/visit her once she recovers and is out of the hospital.- http://www.ardsusa.org/tips_post_ards.htm
Mike
Heather’s condition continues to improve daily. They plan to have her on her back for 24 hours and then flat on her back for a few more hours after that. If she’s able to maintain oxygen levels and other levels, they’ll move her to a regular bed! They took her off the paralytic drug today and I was able to see her jaw moving a bit and her eyelids moving a little. She’s still in a sleep state but is probably aware of people around her now. Drew and Emily and her parents are coming in this weekend. She may very well be awake by then!
Mike
Wed, 21 Oct 2009 19:56:05 -0500
They put Heather into a regular hospital bed in the ICU today. She’s sleeping MUCH more comfortably and even opened her eyes a few times. They still have her on the sedative and morphine so she’s in and out of consciousness but not awake enough to respond. It’s just wonderful to see her beautiful eyes again!
I feel like I can hear cheers of joy from us all!!! Yahoo, yippee and yee haw!!
Thank you God!!
Connie Hollingsworth
Sat, 24 Oct 2009 08:49:52 -0500
Sorry I’ve not sent updates the last couple of nights. Heather was moved to a regular bed in ICU so I’ve been spending more time at the hospital. Her condition continues to improve. She recognizes it’s me when I come into the room and is obviously confused/scared by the fact she can’t talk due to the breathing tube. Because of the steroids and paralytic drugs, it’s difficult for her to move her hands/legs, which adds to the confusion. She can have visitors but we’re trying to limit visits so we don’t overwhelm her. Please email me if you’d like to see her and we’ll make arrangements. Emily and Drew and her parents came in to see her this weekend, so that offers some comfort to her. The doctors are hoping to remove the breathing tube by the end of the weekend if they can wean her off of it.
Mike
Sun, 18 Oct 2009 20:03:10 -0500
I spoke with Dr. Winegardner this morning and she seems to have turned a corner. They have her temperature under control. (it was a reaction to specific meds) Her kidney functions are improving. She was able to withstand 5 hours on her back with O2 at 50%. He said that he’s hopeful that she could be out of this bed and into a regular hospital bed in the next couple of days. I can’t tell you the relief we felt today when he said that. Anyone who doesn’t believe in the power of prayer or at the very least, positive energy, needs to take a look at what it’s done for our family! I’ll continue to send out updates until she’s home. I know many people will want to see her and talk to her when she’s out of the hospital, but realize that she’ll still need lots of care before she’s recovered fully. I don’t want to her to become overwhelmed. You know Heather…she’ll want to take on too much too soon!
Mike
Mon, 19 Oct 2009 18:54:37 -0500
Heather was able to withstand 10 hours on her back last night. The doctors are hopeful that she’ll be out of this bed and into a regular hospital bed in the ICU in the next couple of days. Her O2 is at 40% and PEEP of 8. Major change as compared to Sunday the 11th. Here is a guide on ARDS for those of you who will want to see/visit her once she recovers and is out of the hospital.- http://www.ardsusa.org/tips_post_ards.htm
Mike
Heather’s condition continues to improve daily. They plan to have her on her back for 24 hours and then flat on her back for a few more hours after that. If she’s able to maintain oxygen levels and other levels, they’ll move her to a regular bed! They took her off the paralytic drug today and I was able to see her jaw moving a bit and her eyelids moving a little. She’s still in a sleep state but is probably aware of people around her now. Drew and Emily and her parents are coming in this weekend. She may very well be awake by then!
Mike
Wed, 21 Oct 2009 19:56:05 -0500
They put Heather into a regular hospital bed in the ICU today. She’s sleeping MUCH more comfortably and even opened her eyes a few times. They still have her on the sedative and morphine so she’s in and out of consciousness but not awake enough to respond. It’s just wonderful to see her beautiful eyes again!
I feel like I can hear cheers of joy from us all!!! Yahoo, yippee and yee haw!!
Thank you God!!
Connie Hollingsworth
Sat, 24 Oct 2009 08:49:52 -0500
Sorry I’ve not sent updates the last couple of nights. Heather was moved to a regular bed in ICU so I’ve been spending more time at the hospital. Her condition continues to improve. She recognizes it’s me when I come into the room and is obviously confused/scared by the fact she can’t talk due to the breathing tube. Because of the steroids and paralytic drugs, it’s difficult for her to move her hands/legs, which adds to the confusion. She can have visitors but we’re trying to limit visits so we don’t overwhelm her. Please email me if you’d like to see her and we’ll make arrangements. Emily and Drew and her parents came in to see her this weekend, so that offers some comfort to her. The doctors are hoping to remove the breathing tube by the end of the weekend if they can wean her off of it.
Mike
The Race Was On
Week 2 begins with more of the same and phone calls went to family members informing them of the current situation. The race began to get to Austin in order to see me and support Mike, my parents and the kids.
Krista, Mike's sister, made a mad dash to Texas when she got the call from Mike on Sunday that things looked bleak. She was able to make arrangements for the kids and throw some items in a backpack and head to the airport in short order. As I talk to Krista now, she tells me she had Mike put the phone to my ear so she could tell me she was on her way and that she would she me when she got here. While on the plane, she prayed the entire flight reminding God that he had already taken so many family members from her life.
Brandy picked Krista up from the airport. Having never met, Brandy asked what she was wearing so she would recognize Krista. Krista told her to look for the purple backpack! At least I think it was purple, anyhow you get the picture.
Stuart, my brother, flew in from Maryland. Angela, my best friend, flew in from Lubbock eventhough it was her 40th birthday. Friends and family came from all over Texas: Houston, Temple, Lubbock, San Antonio, San Marcos, Austin and of course, Kyle.
Below are emails that recount the week in detail:
Mon, 12 Oct 2009 21:07:03 -0500
Heather made it another day. Her left lung showed a little improvement and she kept her O2 level up. Krista arrived fine and we all spent the day at the hospital together. Not a great way for Krista to meet her in-laws…but I guess Heather had a similar experience. Let’s hope we don’t have any more like that. I’m pretty tired, but just wanted to drop you a note to say we made it another day.
Love Mike
Wed, 14 Oct 2009 07:11:47 -0500
For those who don’t know, my wife Heather was admitted to Seton Hospital ICU last Wednesday for pneumonia. Her condition worsened and turned into ARDS (please do a Google search on the subject for more info) She was put on a special rotating bed last Friday (RotoProne) that keeps her alive until she can start to heal. I created this distribution list of friends, coworkers and family members so that people can get regular updates. It’s difficult to answer the same questions over and over. This seems a simpler way to keep people updated on her condition.
10/14/09
We had another stable day yesterday. Her O2 was up a little from the day before. Sorry I missed sending an update yesterday. This all is pretty overwhelming. I spoke to the rep who makes the RotoProne bed at her bedside yesterday and he said that H1N1 (which this may have started as) patients a lot of times are on this bed for 2-3 weeks. They gave her a paralytic drug yesterday which paralyzes her body so she doesn't move or cough. This keeps her O2 at max potential. A good number is above 89. She stayed around 93-94 yesterday. The outpouring of support has been tremendous and one day I hope she'll be able to read this and thank you herself.
Mike
Wed, 14 Oct 2009 21:08:05 -0500
Heather had another stable day. The doctors dropped the O2 to 80% and her PEEP to 16. (That’s a good thing. You and I breathe about 21% O2 and a PEEP of 5-8) She had been on 100% O2 and 18-20 PEEP. Little improvements make my day. Her kidney numbers seem to have plateau’d too rather than getting worse. She does have a low grade fever but they’re giving her Tylenol to bring it down.
Mike
Hello, I am Heather's neighbor and I hope not to offend anyone by sending this email, but I wanted to share some links that I researched that explain Heather's condition as well as the special Rotoprone bed that she has been placed in.
What ARDS is and this one pager seemed to explain it well:
http://www.merck.com/mmhe/sec04/ch055/ch055c.html
The Rotoprone bed that she has been placed in is described as follows:
http://www.kci1.com/cs/Satellite?c=KCI_Product_C&childpagename=KCI1%2FKCILayout&cid=1229624988017&p=1229538260433&packedargs=locale%3Den_US&pagename=KCI1Wrapper
This is a Dallas news article just written today about a man that was in the same condition and feels this bed saved his life:
http://cbs11tv.com/local/rotoprone.bed.baylor.2.1248534.html
I hope these links work if you haven't had the chance to read about this.
Keep the faith! - Laura
Thu, 15 Oct 2009 19:48:55 -0500
We had another good day today. One of her doctors said that he was more positive about her condition. Her O2 was at 70% and PEEP of 14. (as opposed to 90% O2 and 18 PEEP Tuesday) He mentioned that her x-rays from yesterday were slightly improved. She did have a fever today that spiked at 102.9 but the doctors ran cultures and didn’t seem too worried about it. Her kidney doctor will put her on dialysis tomorrow to make sure her kidneys don’t get damaged from the stress they’ve received. We watched the nurses take care of her skin today and change out some of the padding from the bed. Her O2 rate stayed above 89 for the whole hour they had her on her back taking care of her. She’s not out of the woods yet but I’m starting to feel better about her condition.
Mike
Fri, 16 Oct 2009 16:04:38 -0500
They've dropped Heather's O2 to 50% and PEEP to 10. She does have a fever that's of concern but all the cultures have come back negative. (I told the doctor she's a hottie anyway) They think it may be a nasal infection or urinary infection. Her doctor said she'd made great strides compared to Sunday. They decided to hold off on dialysis to verify if her kidney functions improve as they're borderline right now. My wife's a fighter and she's young. I can't wait to hold her again. This last week and a half has been surreal and absolutely insane!
For all you Mom's and Dad's out there, when you have a child who's sick...take a lot of precautions so that you don't get sick. This started as the flu (maybe H1N1) progressed to pneumonia and became full blown ARDS...which is deadly.
Mike
Heather was able to be on her back last night for 4 ½ hours. Absolutely amazing since they could barely put her on her side this past Tuesday. Her fever went down and the doctors found it was the combination of drugs which caused it rather than a secondary infection. Her lungs are starting to clear too. Both doctors we spoke to today said she’s starting to make progress and things are cautiously optimistic. She probably will be on this bed for another 3-7 days before she will be moved to a regular bed. Her friend from Lubbock, Angela came down despite it being her birthday so we celebrated at Papadeaux. Can’t wait until Heather can join us for her favorite Mexican martini!
Mike
It was good to see Heather “on her back” Sunday evening. I had a nice visit with Heather & I got to do all the talking! Heather is starting to look a little more like herself, you know she’s laying around in that bed naked!! She just had a towel covering her front side, thank goodness it wasn’t her back side that was in the “up” position. Heather is very fortunate to have so many friends that love her and are praying for her…………..
Connie Hollingsworth
Volunteer Program Assistant
Krista, Mike's sister, made a mad dash to Texas when she got the call from Mike on Sunday that things looked bleak. She was able to make arrangements for the kids and throw some items in a backpack and head to the airport in short order. As I talk to Krista now, she tells me she had Mike put the phone to my ear so she could tell me she was on her way and that she would she me when she got here. While on the plane, she prayed the entire flight reminding God that he had already taken so many family members from her life.
Brandy picked Krista up from the airport. Having never met, Brandy asked what she was wearing so she would recognize Krista. Krista told her to look for the purple backpack! At least I think it was purple, anyhow you get the picture.
Stuart, my brother, flew in from Maryland. Angela, my best friend, flew in from Lubbock eventhough it was her 40th birthday. Friends and family came from all over Texas: Houston, Temple, Lubbock, San Antonio, San Marcos, Austin and of course, Kyle.
Below are emails that recount the week in detail:
Mon, 12 Oct 2009 21:07:03 -0500
Heather made it another day. Her left lung showed a little improvement and she kept her O2 level up. Krista arrived fine and we all spent the day at the hospital together. Not a great way for Krista to meet her in-laws…but I guess Heather had a similar experience. Let’s hope we don’t have any more like that. I’m pretty tired, but just wanted to drop you a note to say we made it another day.
Love Mike
Wed, 14 Oct 2009 07:11:47 -0500
For those who don’t know, my wife Heather was admitted to Seton Hospital ICU last Wednesday for pneumonia. Her condition worsened and turned into ARDS (please do a Google search on the subject for more info) She was put on a special rotating bed last Friday (RotoProne) that keeps her alive until she can start to heal. I created this distribution list of friends, coworkers and family members so that people can get regular updates. It’s difficult to answer the same questions over and over. This seems a simpler way to keep people updated on her condition.
10/14/09
We had another stable day yesterday. Her O2 was up a little from the day before. Sorry I missed sending an update yesterday. This all is pretty overwhelming. I spoke to the rep who makes the RotoProne bed at her bedside yesterday and he said that H1N1 (which this may have started as) patients a lot of times are on this bed for 2-3 weeks. They gave her a paralytic drug yesterday which paralyzes her body so she doesn't move or cough. This keeps her O2 at max potential. A good number is above 89. She stayed around 93-94 yesterday. The outpouring of support has been tremendous and one day I hope she'll be able to read this and thank you herself.
Mike
Wed, 14 Oct 2009 21:08:05 -0500
Heather had another stable day. The doctors dropped the O2 to 80% and her PEEP to 16. (That’s a good thing. You and I breathe about 21% O2 and a PEEP of 5-8) She had been on 100% O2 and 18-20 PEEP. Little improvements make my day. Her kidney numbers seem to have plateau’d too rather than getting worse. She does have a low grade fever but they’re giving her Tylenol to bring it down.
Mike
Hello, I am Heather's neighbor and I hope not to offend anyone by sending this email, but I wanted to share some links that I researched that explain Heather's condition as well as the special Rotoprone bed that she has been placed in.
What ARDS is and this one pager seemed to explain it well:
http://www.merck.com/mmhe/sec04/ch055/ch055c.html
The Rotoprone bed that she has been placed in is described as follows:
http://www.kci1.com/cs/Satellite?c=KCI_Product_C&childpagename=KCI1%2FKCILayout&cid=1229624988017&p=1229538260433&packedargs=locale%3Den_US&pagename=KCI1Wrapper
This is a Dallas news article just written today about a man that was in the same condition and feels this bed saved his life:
http://cbs11tv.com/local/rotoprone.bed.baylor.2.1248534.html
I hope these links work if you haven't had the chance to read about this.
Keep the faith! - Laura
Thu, 15 Oct 2009 19:48:55 -0500
We had another good day today. One of her doctors said that he was more positive about her condition. Her O2 was at 70% and PEEP of 14. (as opposed to 90% O2 and 18 PEEP Tuesday) He mentioned that her x-rays from yesterday were slightly improved. She did have a fever today that spiked at 102.9 but the doctors ran cultures and didn’t seem too worried about it. Her kidney doctor will put her on dialysis tomorrow to make sure her kidneys don’t get damaged from the stress they’ve received. We watched the nurses take care of her skin today and change out some of the padding from the bed. Her O2 rate stayed above 89 for the whole hour they had her on her back taking care of her. She’s not out of the woods yet but I’m starting to feel better about her condition.
Mike
Fri, 16 Oct 2009 16:04:38 -0500
They've dropped Heather's O2 to 50% and PEEP to 10. She does have a fever that's of concern but all the cultures have come back negative. (I told the doctor she's a hottie anyway) They think it may be a nasal infection or urinary infection. Her doctor said she'd made great strides compared to Sunday. They decided to hold off on dialysis to verify if her kidney functions improve as they're borderline right now. My wife's a fighter and she's young. I can't wait to hold her again. This last week and a half has been surreal and absolutely insane!
For all you Mom's and Dad's out there, when you have a child who's sick...take a lot of precautions so that you don't get sick. This started as the flu (maybe H1N1) progressed to pneumonia and became full blown ARDS...which is deadly.
Mike
Heather was able to be on her back last night for 4 ½ hours. Absolutely amazing since they could barely put her on her side this past Tuesday. Her fever went down and the doctors found it was the combination of drugs which caused it rather than a secondary infection. Her lungs are starting to clear too. Both doctors we spoke to today said she’s starting to make progress and things are cautiously optimistic. She probably will be on this bed for another 3-7 days before she will be moved to a regular bed. Her friend from Lubbock, Angela came down despite it being her birthday so we celebrated at Papadeaux. Can’t wait until Heather can join us for her favorite Mexican martini!
Mike
It was good to see Heather “on her back” Sunday evening. I had a nice visit with Heather & I got to do all the talking! Heather is starting to look a little more like herself, you know she’s laying around in that bed naked!! She just had a towel covering her front side, thank goodness it wasn’t her back side that was in the “up” position. Heather is very fortunate to have so many friends that love her and are praying for her…………..
Connie Hollingsworth
Volunteer Program Assistant
Tuesday, May 25, 2010
The Voice Mail
People react to situations very differently. Some are very open with their emotions like my daughter Emily. Others are reserved and closed off like my son Drew. Once I was in the rehab facility, I listened to a voice message Drew left for me that bleak Sunday. The written version below does not capture the emotion in his voice, but I'm sure you will be able to get the idea.
Momma, it's me Drew. I just wantede to tell you how much I love you. I love you so much. And you know me...I haven't cried, but I'm crying now. I just wanted to tell you that I love you and that everyone is praying for you. And this is nothing new for you 'cause you always sleep. Momma I love you. And you know me...you are my go-to person. And we are all praying for you. Momma I love you and I want to do for you what you always did for me...I'm going to sing to you.
{in broken tearfilled voice he sang}
You are my sunshine
my only sunshine
You make me happy
when skies are gray
You'll never know dear
How much I love you
Please don't take my sunshine away
I love you Momma.
Momma, it's me Drew. I just wantede to tell you how much I love you. I love you so much. And you know me...I haven't cried, but I'm crying now. I just wanted to tell you that I love you and that everyone is praying for you. And this is nothing new for you 'cause you always sleep. Momma I love you. And you know me...you are my go-to person. And we are all praying for you. Momma I love you and I want to do for you what you always did for me...I'm going to sing to you.
{in broken tearfilled voice he sang}
You are my sunshine
my only sunshine
You make me happy
when skies are gray
You'll never know dear
How much I love you
Please don't take my sunshine away
I love you Momma.
A Husband's Love
Mike wrote the email below that Sunday night/Monday morning when they thought they were going to lose me. I didn't actually get to read the email until I was in the rehab facility. As you read the email, you will realize the impact on a husband during such a trying and emotional time. There are times in a marriage when you wonder if the love is as strong as it started. After reading this email, there is no doubt in my mind how much Mike loves me and how much he has endured.
I’m up at 4:00am wondering if I’ll ever have the opportunity to hold you again. I’ve rallied every friend/family member I know to pray for you as well as the photography community. I only hope that it’s enough. I went to a men’s meeting Saturday and it was a little comforting. I really should start that up again. It will help me with the anger and to be a better person.
I know I can make promises as to how things will be if God lets you survive this but it feels like I’m bargaining…and I don’t want anything negative to hinder your chances. To pray for God’s will at times like these is one of the hardest things I can ever do…but I know he’s really powerful. You seem to have one of the strongest doctor’s/nurses teams in the country for an illness such as this. Emily and Drew both are with you daily and Emily especially is spending time next to you even though it’s scary to her. I don’t know what your final wishes would be other than that you mentioned that you wanted your life insurance to go to the kids. I’m just typing as thoughts enter my head because I need the release and I already miss you so much. It scares me to death to go to the hospital every morning…not knowing if they’ll tell me something negative. I thought we were going to lose you yesterday and somehow your condition stabilized a little. I can only hope for miracles and that somehow you pull through this.
I really have fallen more deeply in love with you than any other woman I’ve ever met or thought about. You ARE the love of my life and I want this to continue forever. There were times when I thought that I’d not worry about my weight/health too much thinking that I’d go before you so that you’d have the financial benefits. Now I can’t imagine putting you through this type of pain if it’s even a tiny bit as much I’m feeling right now.
I love you. I love you. I love you. PLEASE come back to us.
Mike
I’m up at 4:00am wondering if I’ll ever have the opportunity to hold you again. I’ve rallied every friend/family member I know to pray for you as well as the photography community. I only hope that it’s enough. I went to a men’s meeting Saturday and it was a little comforting. I really should start that up again. It will help me with the anger and to be a better person.
I know I can make promises as to how things will be if God lets you survive this but it feels like I’m bargaining…and I don’t want anything negative to hinder your chances. To pray for God’s will at times like these is one of the hardest things I can ever do…but I know he’s really powerful. You seem to have one of the strongest doctor’s/nurses teams in the country for an illness such as this. Emily and Drew both are with you daily and Emily especially is spending time next to you even though it’s scary to her. I don’t know what your final wishes would be other than that you mentioned that you wanted your life insurance to go to the kids. I’m just typing as thoughts enter my head because I need the release and I already miss you so much. It scares me to death to go to the hospital every morning…not knowing if they’ll tell me something negative. I thought we were going to lose you yesterday and somehow your condition stabilized a little. I can only hope for miracles and that somehow you pull through this.
I really have fallen more deeply in love with you than any other woman I’ve ever met or thought about. You ARE the love of my life and I want this to continue forever. There were times when I thought that I’d not worry about my weight/health too much thinking that I’d go before you so that you’d have the financial benefits. Now I can’t imagine putting you through this type of pain if it’s even a tiny bit as much I’m feeling right now.
I love you. I love you. I love you. PLEASE come back to us.
Mike
The Bed
I have really been putting off writing this part of my story. It is very difficult for family to talk about the details and emotions. I have also not wanted to face the reality that I almost slipped away from the world. As you read below, realize the details are slim but the emotions were great...
On Friday, I was finally placed in the rotoprone bed which the doctors explained would optimize my oxygen levels. In order for me to gain the most and not fight the bed, I was placed in a chemical induced coma. Most people stayed in the bed about a week before they improved. My total time in the bed was double the normal. I was in for 13 days.
At the same time, another girl was in the same type of bed and was 2 days ahead of me in the whole process. Mike and my parents would watch her progression to determine the course I would take. As they watched, they had hope. The doctors cautioned them stating we were two completely different cases, yet they couldn't help but hope I'd follow the same course.
Sunday was a very bleak day for everyone. Even with the aggressive treatment, my oxygen levels were not improving and my kidneys were beginning to fail as well. Mike asked the doctor to be completely honest with him about what was going to happen. The doctor looked at him with a serious face filled with sadness. As he took his glasses off to wipe his eyes, he told Mike that there was a great possibility I wouldn't make it through the day. Mike made the necessary phone calls to family and friends and the prayers started. When Mike talked to his sister, she immediately said she was on her way. She had Mike put the phone to my ear so she could tell me she would see me when she got here.
Family and friends came to the hospital to give support. Daron, Christy and the kids were getting ready to head back to Flower Mound when they got the call. Daron asked Mike if he needed to bring the kids up, and the mutual decision was yes. Daron explained to the kids that the situation had taken a turn for the worse. They would need to go say their goodbyes. I cannot imagine the fear and emotion that came over them knowing that their Momma was more than likely going to die by the end of the day. Both kids recall crying and being angry that things were going down this road. When the kids got to the hospital, they both sat with me and talked to me telling me how much they loved me and to get better. The doctors took time to show the kids before and after x-rays of my lungs. The x-rays showed the lungs full of fluid which gave the kids a better understanding of what we were dealing with.
When I think about what my parents were experiencing my heart starts to hurt. Parents are not supposed to out live their children. The sadness and the fear they felt must have been overwhelming. Mom tells me she was quiet the entire day - not talking to anyone, just sitting in sadness.
Everyone at the hospital that day gave love and support to each other.
On Friday, I was finally placed in the rotoprone bed which the doctors explained would optimize my oxygen levels. In order for me to gain the most and not fight the bed, I was placed in a chemical induced coma. Most people stayed in the bed about a week before they improved. My total time in the bed was double the normal. I was in for 13 days.
At the same time, another girl was in the same type of bed and was 2 days ahead of me in the whole process. Mike and my parents would watch her progression to determine the course I would take. As they watched, they had hope. The doctors cautioned them stating we were two completely different cases, yet they couldn't help but hope I'd follow the same course.
Sunday was a very bleak day for everyone. Even with the aggressive treatment, my oxygen levels were not improving and my kidneys were beginning to fail as well. Mike asked the doctor to be completely honest with him about what was going to happen. The doctor looked at him with a serious face filled with sadness. As he took his glasses off to wipe his eyes, he told Mike that there was a great possibility I wouldn't make it through the day. Mike made the necessary phone calls to family and friends and the prayers started. When Mike talked to his sister, she immediately said she was on her way. She had Mike put the phone to my ear so she could tell me she would see me when she got here.
Family and friends came to the hospital to give support. Daron, Christy and the kids were getting ready to head back to Flower Mound when they got the call. Daron asked Mike if he needed to bring the kids up, and the mutual decision was yes. Daron explained to the kids that the situation had taken a turn for the worse. They would need to go say their goodbyes. I cannot imagine the fear and emotion that came over them knowing that their Momma was more than likely going to die by the end of the day. Both kids recall crying and being angry that things were going down this road. When the kids got to the hospital, they both sat with me and talked to me telling me how much they loved me and to get better. The doctors took time to show the kids before and after x-rays of my lungs. The x-rays showed the lungs full of fluid which gave the kids a better understanding of what we were dealing with.
When I think about what my parents were experiencing my heart starts to hurt. Parents are not supposed to out live their children. The sadness and the fear they felt must have been overwhelming. Mom tells me she was quiet the entire day - not talking to anyone, just sitting in sadness.
Everyone at the hospital that day gave love and support to each other.
Thursday, May 6, 2010
Slipping Away
As I lay in the hospital "sleeping" for lack of a better term, my family experienced a rollercoaster of emotion. The emotion started out as worried but confident that I would be okay in a few days. Life went about it's normal course as Emily went to school and Mike took care of things at the house before and after his visit to the hospital. Wednesday evening Mike went home to get some rest as he hadn't had a good nights sleep for about a week. Later that evening, he was awaken to a phone call from the hospital saying they were going to move me to intermediate care because I wasn't getting enough oxygen. Wanting more details, Mike decided to call the doctor; however, he was interrupted by another call from the hospital saying I was being moved to ICU.
Calls were made to family members to update them on the situation. Everyone was making arrangements to come see me when needed as the belief was I would be better in a few days. The first few hours in ICU were pretty typical of anyone with pneumonia. I ran fever; couldn't eat or keep anything down unitl they found the Lemon Ice. For anyone who's been in the hospital, you know that the Lemon Ice is smooth, sweet with a bit of lemon tartness. It is very refreshing when nothing else works. Of course, I liked this very much and ate as much of it as I could. Little did I know that it would be the last thing I actually ate for at least a month!
Things started to turn for the worse and my oxygen level kept dropping. The decision was made to put me on a ventilator. By this time, Emily was staying with family and friends. And, Daron had told Drew to be prepared to take a trip to Austin to see me. The kids were worried, but everyone kept telling them I was going to be alright. Emily was worried and wondered when I'd be home. Whenever she was scared, she would call her Dad for reassurance. Of course, Drew handled the situation as he always does stuffing the emotion way down deep so he doesn't have to feel it. It's easier that way (at least in the short run!).
Mom and Dad first learned of me going to ICU when Dad was having surgery on his elbow. He had the forsight to ask the doctor what the implications would be if they needed to travel to see me. The doctors explained that he was not to sit still but to move around as to not have any blood clots. Mom and Dad talked to Mike to find out if he needed them now or if they could wait until the weekend. Mike assured them that the weekend was fine that I would be okay.
As the week started to come to an end, my struggle became even more difficult. I had developed ARDS which is Acute Respiratory Distress Syndrome. In the past, only 10% of the people diagnosed with ARDS actually survived it. However in recent years, a special bed called a "Rotoprone Bed" was designed to help patients with ARDS. The bed positioned the patient in a manner that the lungs could be released of pressure and provide the optimal environment for oxygen absorbtion.
Here's the schematic of the bed:
With the ARDS diagnosis, the doctors determined that I would need the Rotoprone bed to survive. And now started the hunt for the bed...the last available bed in the Central Texas region was found and was to be transferred to the hospital. With the bed enroute, the doctors explained to Mike that it would be best for the kids to see me before they put me in the bed. Once again, calls were made and the race began.
Daron immediately told Drew to pack is bags because they were headed to Austin. He thought "Alrighy" I guess I need to call my coach! Once they got to town, they stopped by Emily's school to pick her up. Drew said it really sucked picking Em up from school. She knew something wasn't right if Dad and Drew where there to get her in the middle of the day. The minute Emily walked into the office and saw Dad and Drew she broke down and tears began to flow. Seeing his little girl upset and knowing how grave the situation was, Daron's eyes filled with tears as well. Once again, Drew was strong pushing all the emotion aside.
Mom and Dad also made the drive to Austin except this time Mom was behind the wheel. Dad was in the passenger seat trying to move around as much as he could because of the recent surgery. Now, it's a blur as to whether Mom and Dad came in on Thursday night or Friday morning; the important part is they came especially since Dad had just gotten out of surgery!
As everyone came to the ICU, they all had the same overwhelming realization...this is serious! Emily was shocked to see how many machines, cords and tubes were hooked up to my body. She cried and held my hand to comfort me. Drew still holding all the emotion in thought "Man, she's hooked up to a lot of shit!" And Mom's take on the whole scene was that she had never seen anything like it. It was a scene that you haven't even seen on television. Before seeing me, no one really grasped the severity of the situation.
The bed finally arrived and I was placed inside.
Below is the string of emails Mike sent to update family and friend of my status:
Fri, 9 Oct 2009 23:14:31 -0500
Family and friends,
Many of you know, some don’t but Heather had to be admitted to the ICU on Thursday due to extreme pneumonia. They were having trouble getting her oxygenated and her levels kept decreasing. The doctors put her into a special type of bed today which rotates (see attached) which has stabilized her O2 levels. They expect that she’ll be in ICU for several days. Heather’s parents are here and Daren brought the kids in to see her before they had to put her into the prone bed. You can imagine the stress this is putting on us all…so I ask that you keep her in your prayers.
If you’d like to reach out to me, feel free to send me an email unless I call you (except for family) as I’ve been having a tough time getting rest between hospital visits. I’ll try to send out status updates as they come in.
Always,
Mike
Sat, 10 Oct 2009 18:40:08 -0500
Picture of Heather in her RotoProne bed. So far so good. She's still very sick but stable right now.
Love Mike
Email sent to our Photography Group:
This group is a lot of fun but today I write to you about something serious. Most of you who have attended our events have met Mike's wonderful wife, Heather. Heather provides the group with quite a bit of support from posting information to ordering food to helping models with makeup.
This week, Heather was admitted to the hospital for some health problems. Mike just called to let me know that Heather's condition has taken a turn for the worse and today she was admitted to the ICU.
Please keep Heather, Mike and their family in your thoughts as we all cross our fingers for a speedy recovery for Heather.
Tim Babiak
Calls were made to family members to update them on the situation. Everyone was making arrangements to come see me when needed as the belief was I would be better in a few days. The first few hours in ICU were pretty typical of anyone with pneumonia. I ran fever; couldn't eat or keep anything down unitl they found the Lemon Ice. For anyone who's been in the hospital, you know that the Lemon Ice is smooth, sweet with a bit of lemon tartness. It is very refreshing when nothing else works. Of course, I liked this very much and ate as much of it as I could. Little did I know that it would be the last thing I actually ate for at least a month!
Things started to turn for the worse and my oxygen level kept dropping. The decision was made to put me on a ventilator. By this time, Emily was staying with family and friends. And, Daron had told Drew to be prepared to take a trip to Austin to see me. The kids were worried, but everyone kept telling them I was going to be alright. Emily was worried and wondered when I'd be home. Whenever she was scared, she would call her Dad for reassurance. Of course, Drew handled the situation as he always does stuffing the emotion way down deep so he doesn't have to feel it. It's easier that way (at least in the short run!).
Mom and Dad first learned of me going to ICU when Dad was having surgery on his elbow. He had the forsight to ask the doctor what the implications would be if they needed to travel to see me. The doctors explained that he was not to sit still but to move around as to not have any blood clots. Mom and Dad talked to Mike to find out if he needed them now or if they could wait until the weekend. Mike assured them that the weekend was fine that I would be okay.
As the week started to come to an end, my struggle became even more difficult. I had developed ARDS which is Acute Respiratory Distress Syndrome. In the past, only 10% of the people diagnosed with ARDS actually survived it. However in recent years, a special bed called a "Rotoprone Bed" was designed to help patients with ARDS. The bed positioned the patient in a manner that the lungs could be released of pressure and provide the optimal environment for oxygen absorbtion.
Here's the schematic of the bed:
With the ARDS diagnosis, the doctors determined that I would need the Rotoprone bed to survive. And now started the hunt for the bed...the last available bed in the Central Texas region was found and was to be transferred to the hospital. With the bed enroute, the doctors explained to Mike that it would be best for the kids to see me before they put me in the bed. Once again, calls were made and the race began.
Daron immediately told Drew to pack is bags because they were headed to Austin. He thought "Alrighy" I guess I need to call my coach! Once they got to town, they stopped by Emily's school to pick her up. Drew said it really sucked picking Em up from school. She knew something wasn't right if Dad and Drew where there to get her in the middle of the day. The minute Emily walked into the office and saw Dad and Drew she broke down and tears began to flow. Seeing his little girl upset and knowing how grave the situation was, Daron's eyes filled with tears as well. Once again, Drew was strong pushing all the emotion aside.
Mom and Dad also made the drive to Austin except this time Mom was behind the wheel. Dad was in the passenger seat trying to move around as much as he could because of the recent surgery. Now, it's a blur as to whether Mom and Dad came in on Thursday night or Friday morning; the important part is they came especially since Dad had just gotten out of surgery!
As everyone came to the ICU, they all had the same overwhelming realization...this is serious! Emily was shocked to see how many machines, cords and tubes were hooked up to my body. She cried and held my hand to comfort me. Drew still holding all the emotion in thought "Man, she's hooked up to a lot of shit!" And Mom's take on the whole scene was that she had never seen anything like it. It was a scene that you haven't even seen on television. Before seeing me, no one really grasped the severity of the situation.
The bed finally arrived and I was placed inside.
Below is the string of emails Mike sent to update family and friend of my status:
Fri, 9 Oct 2009 23:14:31 -0500
Family and friends,
Many of you know, some don’t but Heather had to be admitted to the ICU on Thursday due to extreme pneumonia. They were having trouble getting her oxygenated and her levels kept decreasing. The doctors put her into a special type of bed today which rotates (see attached) which has stabilized her O2 levels. They expect that she’ll be in ICU for several days. Heather’s parents are here and Daren brought the kids in to see her before they had to put her into the prone bed. You can imagine the stress this is putting on us all…so I ask that you keep her in your prayers.
If you’d like to reach out to me, feel free to send me an email unless I call you (except for family) as I’ve been having a tough time getting rest between hospital visits. I’ll try to send out status updates as they come in.
Always,
Mike
Sat, 10 Oct 2009 18:40:08 -0500
Picture of Heather in her RotoProne bed. So far so good. She's still very sick but stable right now.
Love Mike
This group is a lot of fun but today I write to you about something serious. Most of you who have attended our events have met Mike's wonderful wife, Heather. Heather provides the group with quite a bit of support from posting information to ordering food to helping models with makeup.
This week, Heather was admitted to the hospital for some health problems. Mike just called to let me know that Heather's condition has taken a turn for the worse and today she was admitted to the ICU.
Please keep Heather, Mike and their family in your thoughts as we all cross our fingers for a speedy recovery for Heather.
Tim Babiak
Wednesday, April 28, 2010
Life throws a curveball
It's amazing how the simplest things in life can snowball into something unimaginable. So many times in my life, I have been the caretaker of my children when they got sick. Just like every mother I know, you love on your children when they aren't feeling well. You hug them, lay next to them, and reassure them that everything will be okay. You are selfless and give your all to your child. You do this without regard or worry that you will get sick as well. This is exactly how the fight began...Emily came home from school with the swine flu.
During 2009, the swine flu (aka H1N1) hit the U.S. with a force that stunned the entire country. There were warnings from the CDC and vaccines were made available to those with the highest risks i.e. young children and pregnant women. Some cases were less serious than the regular flu and some not much worse. Of course there were a few cases that made the headlines as catastropic and deadly. Emily's case lasted all of 4 days...just a minor inconvenience and a nice break from school (at least in her mind!).
She went back to school on Friday, and I went back to work. Fridays are always kinda of crazy; that day was no different. My co-workers as well as myself were too busy coughing to really get much done. We sounded like a strange chorus barking out in sync and then we each had our solo moments. I'm sure others in the cubicles around us were enjoying it as much as we were. A beautiful way to end the week *sarcasm*. At the end of the day, I was exhausted feeling much worse than expected.
Being a Fiday I considered calling the doctor, but I decided to diagnose myself which I do frequently. However this time it wasn't the ebola virus, I was sure I had the swine flu just like Emily; and I would be over it in a few days. The weekend proved to be an uphill battle as I waited for things to turn in my favor. As Monday came, my fever had not subsided but had continuously increased. At this point, I realized that my medical diagnosis was probably inaccurate. This can happen when you don't have a medical degree! This realization hit hard enough that I actually picked up the phone and called the doctor. With the outbreak of the swine flu, the doctor's office was slammed with appointments leaving the only availability for the next day. No worries, I could stick it out another day and fight it on my own. What's one more day, right?
Tuesday morning came and the fever was still high...making me feel like I'd been hit by a truck. You know the feeling...your body hurts, your eyes burn, you can't sleep yet you can't stand to be awake. Your coughing hard enough you think your lungs are going to burst into a million little pieces. You're completely miserable! The old adage that "misery loves company" is true. Normally, this is when I call my mom except she was at school teaching. Yep, even in my late 30's I still call my momma when I'm sick. With mom unavailable I did the next best thing, I called Dad. Looking for sympathy and compassion, we chatted for an hour as I waited for my appointment. I couldn't have asked for him to be more supportive. He kept me preoccupied up to the point I had to leave for the doctor. He told me to be careful driving and to let him know what the doctor had to say. Funny...parents never stop being parents regardless of how old you are.
The day at the doctor's office was quite an experience. As I signed in at the front desk, I was handed a mask to place over my mouth as to not infect anyone else in the waiting room. I had never worn a mask before and was amazed at how uncomfortable and hot they were. Every time I coughed, I just wanted to take the thing off and throw it in the trash. I mean really was I going to get anyone sicker than they already were! For heaven's sake, they were already at the doctor's office. (that's my selfish side showing)After the usual symptom check with the doctor he produced the diagnosis since he is the one with the medical degree! The diagnosis...the swine flu with the possibility of pneumonia. With a prescription in hand, I was off to the lab for X-rays wishing and hoping to feel better. And it was confirmed I had pneumonia! I'd had pneumonia before and knew it wasn't going to be fun, but I would survive.
A course of antibiotics was started and I continued to feel like my energy was slipping away. I kept praying to feel better - still thinking that this would pass in a day or two. Once again, I do not have a medical degree and obviously don't understand the full course of particular illnesses. To complicate matters, I started experiencing the aura I normally get before having a seizure. The aura is strange. I feel weak - like I'm going to be sick. I get flushed and have a great desire to sit or lay down. I know exactly what is about to happen and fear encompasses my entire being. There are times when I can just breathe and talk myself away from a seizure. Of course, more times than not it is inevitable that I'm going to have a fit. They aren't too bad and only last for about a minute. The recovery time is what sucks - 24 hours until I'm back to normal.
With the fear of a seizure setting in, I called for Mike. I guess he could hear in my voice that something wan't right, because he didn't hestiate to come to my side. The moment he got to me I told him what I was feeling and needed to go to the emergency room. After quickly filling Emily in on the situation, we left for the hospital.
Amazingly the new hospital within 3 miles of the house had opened it's doors on October 3rd just 4 days earlier. The emergency room was not very busy... a few people waiting and a few coughing. The wait was extremely short for an emergency room. Can you believe it was only 20 minutes before I went to triage!
By this point my memories start to get vague, but I do remember giving the very young nurse a piece of information that should be passed on to all young women before they have children. It's not talked about often but having a mulitple babies along with some aging and a little weight gain will produce a very undesired effect when you cough. The medical term is "stress incontinence!" It means you pee a little every time you cough, sneeze, laugh, jump, etc. Now on most days, this is just a tiny amount until you throw something like pneumonia in the mix. When you are coughing with a force that feels like it's coming up from your toes and into your lungs before expelling through your mouth, the amount you of fluid released from your bladder is enough that you wished for a diaper! Now, not to be derogatory to those who need diapers, but this is a very distressing and embarassing moment for most adults as all dignity is lost. I felt strongly that the ER nurse know this information. She, the nurse, didn't quite know what to say. She kind of looked at me like I was crazy! I just trying to help...I even had an older nurse confirm the frequency of this happening to women after childbirth. Just remember to do the Kegel exercises!
I'm not sure when or how but it was decided that I be admitted (the hospital bill indicated they did more x-rays - but I don't remember). Being at a new hospital presented us with another dilemma, they didn't have any open beds because they were under staffed. This meant an ambulance ride to Seton Main in Austin. I was prepped for the ride as Mike went home to check on Emily.
The ambulance ride proved to be very bumpy. The city of Austin really does need to do something about their roadways that lead to the hospital. Once at the hospital, we weaved through the hallways, up an elevator and more hallways before landing in a room. I got situated in the bed, the nurse dimmed the light so I could sleep.
When I woke up, it was a more than month later and my memory was gone! Thus the curveball was thrown!
During 2009, the swine flu (aka H1N1) hit the U.S. with a force that stunned the entire country. There were warnings from the CDC and vaccines were made available to those with the highest risks i.e. young children and pregnant women. Some cases were less serious than the regular flu and some not much worse. Of course there were a few cases that made the headlines as catastropic and deadly. Emily's case lasted all of 4 days...just a minor inconvenience and a nice break from school (at least in her mind!).
She went back to school on Friday, and I went back to work. Fridays are always kinda of crazy; that day was no different. My co-workers as well as myself were too busy coughing to really get much done. We sounded like a strange chorus barking out in sync and then we each had our solo moments. I'm sure others in the cubicles around us were enjoying it as much as we were. A beautiful way to end the week *sarcasm*. At the end of the day, I was exhausted feeling much worse than expected.
Being a Fiday I considered calling the doctor, but I decided to diagnose myself which I do frequently. However this time it wasn't the ebola virus, I was sure I had the swine flu just like Emily; and I would be over it in a few days. The weekend proved to be an uphill battle as I waited for things to turn in my favor. As Monday came, my fever had not subsided but had continuously increased. At this point, I realized that my medical diagnosis was probably inaccurate. This can happen when you don't have a medical degree! This realization hit hard enough that I actually picked up the phone and called the doctor. With the outbreak of the swine flu, the doctor's office was slammed with appointments leaving the only availability for the next day. No worries, I could stick it out another day and fight it on my own. What's one more day, right?
Tuesday morning came and the fever was still high...making me feel like I'd been hit by a truck. You know the feeling...your body hurts, your eyes burn, you can't sleep yet you can't stand to be awake. Your coughing hard enough you think your lungs are going to burst into a million little pieces. You're completely miserable! The old adage that "misery loves company" is true. Normally, this is when I call my mom except she was at school teaching. Yep, even in my late 30's I still call my momma when I'm sick. With mom unavailable I did the next best thing, I called Dad. Looking for sympathy and compassion, we chatted for an hour as I waited for my appointment. I couldn't have asked for him to be more supportive. He kept me preoccupied up to the point I had to leave for the doctor. He told me to be careful driving and to let him know what the doctor had to say. Funny...parents never stop being parents regardless of how old you are.
The day at the doctor's office was quite an experience. As I signed in at the front desk, I was handed a mask to place over my mouth as to not infect anyone else in the waiting room. I had never worn a mask before and was amazed at how uncomfortable and hot they were. Every time I coughed, I just wanted to take the thing off and throw it in the trash. I mean really was I going to get anyone sicker than they already were! For heaven's sake, they were already at the doctor's office. (that's my selfish side showing)After the usual symptom check with the doctor he produced the diagnosis since he is the one with the medical degree! The diagnosis...the swine flu with the possibility of pneumonia. With a prescription in hand, I was off to the lab for X-rays wishing and hoping to feel better. And it was confirmed I had pneumonia! I'd had pneumonia before and knew it wasn't going to be fun, but I would survive.
A course of antibiotics was started and I continued to feel like my energy was slipping away. I kept praying to feel better - still thinking that this would pass in a day or two. Once again, I do not have a medical degree and obviously don't understand the full course of particular illnesses. To complicate matters, I started experiencing the aura I normally get before having a seizure. The aura is strange. I feel weak - like I'm going to be sick. I get flushed and have a great desire to sit or lay down. I know exactly what is about to happen and fear encompasses my entire being. There are times when I can just breathe and talk myself away from a seizure. Of course, more times than not it is inevitable that I'm going to have a fit. They aren't too bad and only last for about a minute. The recovery time is what sucks - 24 hours until I'm back to normal.
With the fear of a seizure setting in, I called for Mike. I guess he could hear in my voice that something wan't right, because he didn't hestiate to come to my side. The moment he got to me I told him what I was feeling and needed to go to the emergency room. After quickly filling Emily in on the situation, we left for the hospital.
Amazingly the new hospital within 3 miles of the house had opened it's doors on October 3rd just 4 days earlier. The emergency room was not very busy... a few people waiting and a few coughing. The wait was extremely short for an emergency room. Can you believe it was only 20 minutes before I went to triage!
By this point my memories start to get vague, but I do remember giving the very young nurse a piece of information that should be passed on to all young women before they have children. It's not talked about often but having a mulitple babies along with some aging and a little weight gain will produce a very undesired effect when you cough. The medical term is "stress incontinence!" It means you pee a little every time you cough, sneeze, laugh, jump, etc. Now on most days, this is just a tiny amount until you throw something like pneumonia in the mix. When you are coughing with a force that feels like it's coming up from your toes and into your lungs before expelling through your mouth, the amount you of fluid released from your bladder is enough that you wished for a diaper! Now, not to be derogatory to those who need diapers, but this is a very distressing and embarassing moment for most adults as all dignity is lost. I felt strongly that the ER nurse know this information. She, the nurse, didn't quite know what to say. She kind of looked at me like I was crazy! I just trying to help...I even had an older nurse confirm the frequency of this happening to women after childbirth. Just remember to do the Kegel exercises!
I'm not sure when or how but it was decided that I be admitted (the hospital bill indicated they did more x-rays - but I don't remember). Being at a new hospital presented us with another dilemma, they didn't have any open beds because they were under staffed. This meant an ambulance ride to Seton Main in Austin. I was prepped for the ride as Mike went home to check on Emily.
The ambulance ride proved to be very bumpy. The city of Austin really does need to do something about their roadways that lead to the hospital. Once at the hospital, we weaved through the hallways, up an elevator and more hallways before landing in a room. I got situated in the bed, the nurse dimmed the light so I could sleep.
When I woke up, it was a more than month later and my memory was gone! Thus the curveball was thrown!
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